Hedy Kerek-Bodden
House of Cancer Self-Help – Federal Association
Christian Thiel/Deutscher Ethikrat
“As a former breast cancer patient and a volunteer in independent cancer self-help for over eleven years, I aim to bring the perspective and experiential expertise of cancer patients, people with a hereditary predisposition to cancer and their families into the German Ethics Council. In line with the mission statement of the Federal Association House of Cancer Self-Help, which I chair, I am committed to the best possible medical and psychosocial care and research, but also to the highest possible level of social participation for those affected.”
Focus of the commitment in the German Ethics Council
- Inclusion of the experiential expertise of oncological patients and of people with a hereditary disposition for cancer and their relatives
- Participation of independent cancer self-help in research and care
- Civic engagement in voluntary work
Professional background
- Since 2021 Chairwoman, House of Cancer Self-Help – Federal Association
- 2020–2024 Chairwoman of the Board, Women's Self-Help Cancer Federal Association
- 2019–2021 Recording Clerk, House of Cancer Self-Help – Federal Association
- 2017–2019 Member of the Board, House of Cancer Self-Help – Federal Association
- 2016–2020 Member of the Board, Women's Cancer Self-Help – Federal Association
- 2014–2016 Deputy Chairwoman, Women's Cancer Self-Help – Regional Association North Rhine-Westfalia
- Since 2013 Deputy Head / Head of the Self-Help Group Krefeld, Women's Cancer Self-Help – Regional Association North Rhine-Westfalia
- Research Associate (Project Manager) in the research area of epidemiology and social medicine at the Central Institute of Statutory Health Care
- Studies of Business Administration and Health Economics at the University of Mannheim
- Institute for Medical Information Processing, Statistics and Biomathematics at the University of Munich
- School for Medical Documentation Assistants at the University of Ulm
Memberships
- Since 2024 Member of the German Ethics Council
- Since 2023 Member of the Scientific Committee of the Centre for Cancer Registry Data at the Robert Koch Institute
- Since 2021 Member of the Strategy Group of National Decade Against Cancer
- Since 2021 Patient representative, Board of the German Cancer Society
- Since 2020 Member of the Advisory Board at the Centre for Competence Development in Cancer Self-Help at the University Hospital Freiburg
- Since 2018 Patient representative, Federal Joint Committee
- Since 2017 Member of the German Society of Senology and Member of the Scientific Advisory Board
- Since 2017 Member of the Steering Group of National Cancer Plan
- Since 2013 Member of Women's Cancer Self-Help
Selected publications
- Mählmann, S.; Kerek-Bodden, H.; Weis, J. (2024): Online peer support meetings for women with metastatic cancer: a pre-post evaluation. (Manuscript submitted for publication.)
- Breuning, M.; Mählmann, S.; Kerek-Bodden, H.; Oettlin, S.; Weis, J. (2024): Family caregivers of cancer patients: burdens and support preferences of partner, parent and adult-child caregivers. Psycho-Oncology, 33 (9), e9310. DOI: 10.1002/pon.9310
- Kerek-Bodden, H. (2023): Patientenbeteiligung der unabhängigen Krebs-Selbsthilfe. Professionalisierung, Ressourcen und Qualifikation. Forum, 38 (4), 299–304. DOI: 10.1007/s12312-023-01219-3
- Kerek-Bodden, H. (2023): „Eine einzigartige Sicht“. Für Hedy Kerek-Bodden sind Patienten wichtige Forschungspartner. Gerechte Gesundheit, 64, 20–21.
- Klein, A.; Kerek-Bodden, H.; Labouvie, H.; Hallek, M.; Kusch, M. (2022): Patientenbeteiligung am Beispiel des Innovationsfondsprojekts isPO (integrierte, sektorenübergreifende Psychoonkologie) am onkologischen Spitzenzentrum CIO der Uniklinik Köln.
- Kusch, M. et al. (2022): Integrated, cross-sectoral psycho-oncology (isPO): a new form of care for newly diagnosed cancer patients in Germany. BMC Health Services Research, 22, 543. DOI: 10.1186/s12913-022-07782-0
- Rackerseder, J.; Hornbach, C.; Dicks, P.; Kerek-Bodden, H.; Krieger, T. (2022): Designing a patient-friendly website for newly diagnosed cancer patients with the participatory health research approach. International Journal of Environmental Research and Public Health, 19 (4), 1969. DOI: 10.3390/ijerph19041969
- Beuteführ, D.; Kusch, M.; Klein, A.; Kerek-Bodden, H.; Bruland-Saal, H. (2021): Von Betroffenen für Betroffene. isPO-Onkolots*innen im Einsatz – ein Erfahrungsbericht. Forum, 36 (5), 400–402. DOI: 10.1007/s12312-021-00980-7
- Kofahl, C.; Houwaart, S.; Kerek‑Bodden, H.; Stark, M.; Wiegand, N.; Ziegler, E. (2021): Patientenbeteiligung und -vertretung durch die Krebs-Selbsthilfe. Ergebnisse einer Umfrage mit 204 Leiter*innen von Krebs-Selbsthilfegruppen. In: Deutsche Arbeitsgemeinschaft Selbsthilfegruppen (ed.): Selbsthilfegruppenjahrbuch 2021. Gießen: DAG SHG, 98–107.